Principles and practice in biobank governance / edited by Jane Kaye, Mark Stranger.

Farnham, Surrey : Ashgate Publishing Ltd., c2009.

72344

Bioethics.

Biobanks -- Management.

Tissue banks -- Management.

Tissues -- Collection and preservation -- Government policy.

Biological specimens -- Collection and preservation -- Government policy.

Procurement of organs, tissues, etc. -- International cooperation.

Part I. 1. 2. 3. Part II. 4. 5. 6. 7. 8. Part III. 9. 10. 11. 12. 13. Part IV. 14. 15. 16. 17. Benefit sharing

What benefit sharing arrangements do people want from biobanks? A survey of public opinion in Australia

Reconsidering altruism, introducing reciprocity, and empowerment in the governance of biobanks

From benefit sharing to power sharing : partnership governance in population genomics research

Consent

Co-determination of donors in biobanks

Developing an appropriate consent model for biobanks : in defence of broad consent

Consent by research ethics committees : the new law on biomedical research in Spain

Addressing the ethical objections to pediatric biobanks

Deciding whether to participate in a biobank : the concern of healthy volunteers

Privacy and access

Privacy interests in biobanking : a preliminary view on a European perspective

Feeding back significant findings to participants and relatives

Ensuring participant privacy in networked biobanks

hSERN : a tool to help researchers with the legal requirements of cross-border exchange of biological material

Biobanking networks : what are the governance challenges?

Governing bodies

Potential conflicts in governance mechanisms used in population biobanks

UK biobank ethics and governance council : an exercise in added value

The end of individual control over health information : promoting fair information practices and the governance of biobank research

From public inquiry to policy : biobanks, population genetics and the public interest.

Table of contents and index are taken from the published work with the permission of the publisher.

Includes bibliographical references and index.

9780754678250

xxii, 292 p. : ill. ; 24 cm